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| ESMO open. 2017 Jan 6. doi: 10.1136/esmoopen-2016-000127. pii: esmoopen-2016-000127. pmc: PMC5548978 |
| The European Cancer Patient's Bill of Rights, update and implementation 2016. |
| Højgaard L1, Löwenberg B2, Selby P3, Lawler M4, Banks I5, Law K6, Albreht T7, Armand JP8, Barbacid M9, Barzach M10, Bergh J11, Cameron D12, Conte P13, de Braud F14, de Gramont A15, De Lorenzo F16, Diehl V17, Diler S18, Erdem S19, Geissler J20, Gore-Booth J21, Henning G22, Horgan D23, Jassem J24, Johnson P25, Kaasa S26, Kapitein P27, Karjalainen S28, Kelly J29, Kienesberger A30, La Vecchia C31, Lacombe D32, Lindahl T33, Luzzatto L34, Malby R35, Mastris K36, Meunier F37, Murphy M38, Naredi P39, Nurse P40, Oliver K41, Pearce J42, Pelouchov J43, Piccart M44, Pinedo B45, Spurrier-Bernard G46, Sullivan R47, Tabernero J48, Van de Velde C49, van Herk B50, Vedsted P51, Waldmann A52, Weller D53, Wilking N54, Wilson R55, Yared W56, Zielinski C57, Zur Hausen H58, Le Chevalier T59, Johnston P60 |
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Abstract In this implementation phase of the European Cancer Patient's Bill of Rights (BoR), we confirm the following three patient-centred principles that underpin this initiative:The right of every European citizen to receive the most accurate information and to be proactively involved in his/her care.The right of every European citizen to optimal and timely access to a diagnosis and to appropriate specialised care, underpinned by research and innovation.The right of every European citizen to receive care in health systems that ensure the best possible cancer prevention, the earliest possible diagnosis of their cancer, improved outcomes, patient rehabilitation, best quality of life and affordable health care. The key aspects of working towards implementing the BoR are:Agree our high-level goal. The vision of 70% long-term survival for patients with cancer in 2035, promoting cancer prevention and cancer control and the associated progress in ensuring good patient experience and quality of life.Establish the major mechanisms to underpin its delivery. (1) The systematic and rigorous sharing of best practice between and across European cancer healthcare systems and (2) the active promotion of Research and Innovation focused on improving outcomes; (3) Improving access to new and established cancer care by sharing best practice in the development, approval, procurement and reimbursement of cancer diagnostic tests and treatments.Work with other organisations to bring into being a Europe based centre that will (1) systematically identify, evaluate and validate and disseminate best practice in cancer management for the different countries and regions and (2) promote Research and Innovation and its translation to maximise its impact to improve outcomes. |
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KEYWORDS: Bill of Rights, Cancer Concord, Cancer outcomes |
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Publikations ID: 28848664 Quelle: öffnen |
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